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Hi Olga, I'm sorry that you and your Dad are going through this.
Did you know that Australia has the largest Greek population (outside Geece) in the world? In my city we celebrate Greek culture and food every year with a Panyiri (spelling) festival. It's extremely popular and because we are very multicultural it's a wonderful experience to attend a Greek festival and mix with all ethnicities from all parts of Africa to Asia, South America etc.
This festival helps us to celebrate our diversity while we encompass the best bits of lots of cultures (in my case, the different foods are fascinating).
Good luck to your family and I hope the transfusion problems can be fixed soon.
Regards
Chirley
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Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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