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Is MDS a family disease?
I'm brand new to the Forum. Diagnosed in June with MDS and began treatment with Revlimid this week. My dad had MDS 20 years ago, back when the only treatment was a transfusion. Possibly my paternal grandmother had it as well. Younger brother is still clear but being checked regularly. I've read that it isn't a hereditary disease, but am wondering what others' experience with this has been.
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Sue, age 72; Dx 6/2010 MDS Int-2. Revlimid unsuccessful, began Aranesp 10/2010; additionally Dx PNH 2/2011, Soliris added 3/2011. ATG 5/2011, Cyclosporine 5/2011. Nplate 10/2011 to 10/2012 . Exjade began 12/2013 due to high ferritin level, discontinued 3/2014 because of increase in creatinine.
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