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Omg! Another younger with MDS in London! Edit: and you're an expat, too (I grew up in PA but have lived here for ten years now)
Get yourself to kings college hospital, ASAP. Prof Mufti is one of the world's leading specialists in MDS, and Prof Marsh is the AA specialist. Get a referral to one of them immediately - they seriously know their stuff. I had my bmt at kings in 2009 when I was 30 and I have NOTHING but praise for everyone there. The NHS completely and totally saved my life. Go read my thread in the transplants forum if you want a play-by-play account.
Good luck!
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding!  I've run 5 marathons now!! (PB 3:30!)
Last edited by squirrellypoo : Mon Jan 2, 2012 at 05:54 PM.
Reason: OP is an expat too!
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