Hi, I’d be happy to share some optimist news. My mother was diagnosed in May 2014 at the age of 78 with MDS high risk, and she just turned 82 in January
She was placed on Vidaza for 32 consecutive months before being taken off as it was no longer being effective. Surprisingly, that was more than 2 yrs ago and she is still with us. She is surviving on red blood transfusions ever 3-4 weeks. Her condition, for some reason, has progressed very slowly. While her quality of life is certainly not what it used to be, she still enjoys living. She just can’t go very far or do a lot. She still lives independently in a seniors residence that we refer to as the cruise ship! (It has an indoor swimming pool, small movie theatre, exercise room etc.) She can still look after herself, although she has someone come in to help wiht house chores.
There is therefore life after diagnosis. I hope and pray that your loved one is as fortunate to see a lot more happy days. Best wishes, Annette