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Yikes is right
Hi Kelly,
Seems that you did not get the dx that you wanted to hear from JH. Sorry to hear about that. Think you should take all of the time you need and see as many docs as you need to be comfortable with what might be next. It really is up to you.
One thing to note - Gore has written and I actually questioned him about it that he regards AML as acute MDS. He said the lines are very fuzzy as to where one stops and the other begins. I would listen closely to these JH docs as Gore has been involved with MDS since the mid 90's and really has made it his life work. He said that when first involved that they hardly knew how to classify much of anything, didn't have the analytical tools to do so, and it was a "mess" in his words. They have come a long way. What they did know then was that AML didn't just appear overnight and that there was a process leading to it.
Good luck, stay positive, and if I can help let me know.
Steve
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