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Old Wed Oct 29, 2008, 09:37 AM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
It's really unprofessional for your docs to make statements like that without anything to back them up. Tear-drop shaped red cells don't automatically translate to MDS.

Do you know what your iron levels are? Low iron can cause this. Also, find out what your B12, folate and B6 levels. Pernicious anemia can result in tear-drop shaped red cells. Get the specific numbers not just the response that they are "in the normal range". You need to compare your current results to past results. And, unfortunately, many docs are not up to date on the latest research regarding B12 and will assume that if you B12 is under 500, then it's OK. But the latest research indicates otherwise. If they have not check these, then tell them you want them checked.

Seeing that you are or were anemic, it's not unusual to have a higher retic count especially if your SAA is under control. Your body will produce more red cells to make up what you've been lacking. They should also check for PNH to see if your body is destroying the red cells.

Marlene
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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