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Old Mon Jun 23, 2008, 11:30 PM
mom2c2008 mom2c2008 is offline
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Join Date: Jun 2008
Location: crown point indiana
Posts: 2
My daughter has MDS

Hello

I have a six year old daughter who was diagnosed with MDS in February 2008. She had a bone marrow transplant on April 7, 2008 with a sibling matched donor. All was well until recently she went from 97% engraftment to 47%. Is there anyone out there with a child who has primary MDS? If so how were they treated with and how are they now? I feel like I am the only one dealing with this type of disease. I dont know if there are other options for treatment out there. If we can not get her engraftment back up there they want to do a another transplant where they will use high intensity chemo to totally wipe her immune system out. She would then be admitted for 4 to 6 weeks. From what I have read a lot of children don't survive this type of transplant. Any information you could share would be helpful.
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