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Old Mon Sep 14, 2009, 04:39 AM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Vidaza vs Dacogen

Hi Steven,
The supportive treatment for us is getting better every year . You know if your father's white blood cells are very low he could be treated with Neupogen injections or a similar drug (I take 2 injections/week since neutropenic fever Sept 2007).

Then at least one member has started treatment with Promacta "off record" for low platelets. Promacta seems to decrease blast cells in tubes from MDS patients.

There are now clinical trials with Promacta for MDS patients in the US . Look at
http://clinicaltrials.gov/ct2/results?term=promacta+mds
and you will find a study for patients with advanced MDS in San Antonio, Texas, and one for patients with low to Interm-2 MDS in National Institutes of Health Clinical Center, Bethesda, Maryland.
Kind regards
Birgitta-A
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