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After Vidaza
Hi Rose,
You know there is only one drug approved in the US for MDS except Vidaza and that is Dacogen.
Then patients with the chromosome aberration 5q- can have Revlimid.
Other patients have good effect with the histone deacetylase inhibitors like Epival or Zolinza but these drugs are not approved for MDS.
If your husband had good effect when he was treated with Vidaza - that is less blasts and higher HGB - then he perhaps should continue with that drug. We ought to be more firm with our doctors about Promacta even if we not have seen the results from the trials with MDS patients. Your doctor maybe hesitates because he isn't used to the paper work with Promacta. Look what Kirby has written about how to get Promacta in the US.
Kind regards
Birgitta-A
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