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Hang in there Bob
Your Mother must really appreciate your care for her.
Yeah sounds like you are really getting the run around! Frustrating... absolutely!!!!! Hope they can work this out soon. We really do have to be on the front foot with what's happening don't we... or they may just miss something important!
Hang in there Bob... I understand your anguish. The uncertainty of these conditions is painful at times. A day at a time is how I try to cope. Step by step. My next important appointment is a month away... so I just think of what today has for me. And will think of tomorrow when it comes.
Hope this helps,
Jules
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Julie (38yrs); dx AA 1996 & treated w/ATG, cyclosporine & G-CSF; 2010 dx int-1 secondary MDS, low platelets, on prevention antibiotics, fevers of unknown origin, MUD found for BMT when the time is right, which is now! MDS transformed to AML after many infections.
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