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Old Tue Feb 26, 2013, 01:50 PM
Birgitta-A Birgitta-A is offline
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Join Date: Oct 2007
Location: Stockholm, Sweden
Posts: 1,918
Vidaza

Hi Rich,
Very interesting story!

I wonder if they told you about what type of MDS you were supposed to have 2006?

Six years without symptoms is very good. Do you know what type of MDS you have now?

Wonderful that you have responded so well to Vidaza!

Have they told you anything about the neuropathy? Have you tried Vit B1?

Good with oral Vidaza in the pipeline! Interestingly there are now studies that show that real low risk patients have a lower over all survival with Vidaza than with best supportive care. In EU Vidaza is only approved for high-risk MDS.
Kind regards
Birgitta-A
73 yo, dx MDS Interm-1 2006, supportive therapy with txs, iron chelating drugs and Neupogen for low WBC until 2010. Good results during 33 months with Thalidomide + Prednisone. Now transfusion dependent and eventually getting Revlimid.
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