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Hang in there Steve
Hi Steve,
Sorry the Onconova doesn't seem to be working.
One patient in Chicago area reported that Sapacitabine seems to have lower side effects, it is an oral drug in clinical trials. Do you think you could try it?
I've had good results with low dose Dacogen (decitabine), you might contact
Saunthararajah, Yogen, at the Cleveland Clinic about suggested dosages.
Keep a positive attitude, you are a long term survivor and we all appreciate your encouragement and record in battling MDS/AML.
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Kirby71, RAEB2 dx 2/04, Thalidomide 30 mo, Revlimid 18 mo, No resp Vidaza
6/09 2nd Thalid use, Promacta, Lowdose Dacogen added 10/09 at 40% blasts. 5/11 BMB-blasts 8%.
2/11 2nd Revl restart=good resp, Platelets drop 6/11, 3rd Thalid,+Nplate+Dacogen. 7/12 Cnts stable for 10 mo.
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