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Old Fri Jun 24, 2011, 05:13 PM
rondeb111 rondeb111 is offline
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Join Date: Jan 2011
Location: Troy, MO
Posts: 7
Having same problem

Neil,

We are asking ourselves the same question. My poor dad has been in and out of the hospital just about every week. The good news is his blasts went from 28 to 12 after two treatments of a trial drug. Bad news is he is back in the hospital again after being released on Wednesday of this week. He has an infection some where they just don't know where.

He finds it difficult to even get out bid right now but longs to mow the grass. We try to visit as much as we can when he is in the hospital but he usually doesn't feel like visitors and it's an hours drive one way?

I am reading all the posts for encouragement and maybe some new ideas to bring a little bit of life back for him.
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Debbie, Daughter of Russell age 65, diagnosed MDS RAEB 2 January 2011. Initial blast 18%. No response to Decitabine, blasts up to 28% - Leukemia, Started revlimid & vidaza, 6/11- blasts down to 17%, 7/11had to stop all treatments due to infections. (1994 - C cell lymphoma, 2006 - Prostate cancer)
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