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Old Fri Dec 1, 2017, 01:03 PM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 590
My doctor had me on ursodiol for almost 3 years to try and help out the liver with dealing with toxins. It is an old-school anti-cholesterol drug that might be worth looking into, especially since you are increasing steroid doses, which can also negatively impact liver function, but may be a lesser or 2 evils with the GVHD. I did not experience any side effects with it, and my liver numbers never moved out of the normal range.
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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