Thread: AA
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Old Fri Mar 21, 2008, 07:50 PM
Jbsx19 Jbsx19 is offline
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Join Date: Jul 2007
Location: Florida
Posts: 29
Hi again,
I'm so glad to hear that you have insurance and didn't really think of this in my last post.
One thing I did think of that you should consider when making your decisions for treatment is this: Your daughter is 16yoa and under your insurance,wonderful. But , and I'm trying to be realistic for you,..Once an Aplastic Patient..always an Aplastic patient.If you choose ATG, A patient can go into remission and stay that way forever, but..you still have AA and still need to be monitored for the rest of your life. If you go the transplant route, the AA may be cured..but you are still a transplant patient..for the rest of your life. Once a patient at NIH, whether ATG or transplant,..you are a patient for life and will be monitored and treated...for life.Your daughter's insurance situation may change during the course of her long and healthy life(God willing)..adulthood,job,marriage,whatever(then it becomes a "preexisting condition")...but she will always know that the AA will not be a financial issue.
Just something to consider.. I know because I just got turned down twice for new Insurance because I am not 10years out yet...they rate AA as if it were cancer....

Hope you are coping well,

Judi
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Judi 46yoa VSAA diagnosed May 2003 ATG/Cyclosporine/mycophenolate treatment complete remission ukn cause. I believe caused by stress while on an antibiotic or an allergic reaction to the antibiotic. I also had ITP about 20 years prior.
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