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Old Mon Jan 17, 2011, 09:29 AM
cheri cheri is offline
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Join Date: Nov 2010
Location: Tuckahoe New Jersey
Posts: 243
exjade concerns

Hi Birgitta
I will be seeing the dr for my bmb tomorrow and would like to address the exjade concerns you have on my behalf...(thanks)
What should I ask him specifically?
I believe that my creatine is part of the regular cbcs he's doing..
Re dosage--I weigh about 170 right now, but I feel so good, who cares
I am of course concerned about side effect that this layman can neither see or feel....(then it must not have any right? ) And I am at such a small cancer practice, I'm not sure my Dr sees many either. I think we are walking this road for the first time together,,,which is ok in a lot of aspects. He has done no harm so far...and I am not choosing the transplant route, which would be his first choice...
Please feel free to educate me--I respect your opinion and very grateful that you take time to address my posts personally....(I'm sure everyone here feels the same way... )
thanks....
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Cheri Age 54; dx Oct 2009 AML, induction chemo only;dx MDS July 2010,- PRBC transfusion dependent; Results BMB 8/4/11--- 6-8% blasts; Danazol 100 mg 3xday; quit Exjade/ GI distress; platelets holding 40's; Fluctuation in blasts in blood--Neupogen 3-4xweek; off Revlimid again! Procrit weekly
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