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NIH
Today was John's three month follow up after being released from the Phase I study of Estybon (ON 01910.na) at NIH. One of the doctor's jaw dropped when we told him about John's experience with wheatgrass. Dr. Olnes, the principal investigator of the study, was of the opinion that there is no harm in using the supplement for iron chelation. We will continue to do so. Now if only the Vidaza + Revlimid combo would start showing some results!
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Alice, wife of John, diagnosed MDS RAEB-1 5/10. Tried Vidaza, ON 01910.Na (at NIH), & Vidaza + Revlimid with no effect. Progressed to RAEB-2. Supportive care only from 9/2011 until death 1/26/12.
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