Hmmmm.... interesting. We will look into continually doing the search ourselves thru Be the Match. We were told that the formal search can be very expensive, but that there are many grants that can help offset the cost. Also the hospital said they would hold off collecting on the search costs until transplant, when the insurance company will then pay. They did a cord blood search, found a match, but then because of 3 brain surgeries in the meantime we decided not to go that route. I have a feeling at some point there will be an $8k bill waiting for us for that search
