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Old Fri Dec 16, 2016, 01:50 PM
GoodDay5150 GoodDay5150 is offline
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Join Date: Sep 2014
Location: Centennial, CO
Posts: 150
Hi Neil. Yes, you are correct in my great appreciation of my still anon donor. I'm really curious about what they; (he), is like. If that makes sense! I don't think about the ordeal as much as I used to, but it's something that will always be with me. As far as the frequency of check-ups are concerned, I have been going every few months or so bcse of my GVHD, but they're sort of a routine at this point. And of course, not being tired all the time is still becoming a routine because I guess that I got used to being tired all the time when I had PNH!

Mario
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MARIO, 52, DIAG IN 2011 W/ PNH, MUD IN DEC 2011. MINI TRANS PSL DENVER/ SOME MILD GVHD. CURRENTLY TAKING JAKAFI FOR GVHD.
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