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Old Wed Mar 20, 2013, 03:30 PM
Marlene Marlene is offline
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Join Date: Oct 2006
Location: Springfield, VA
Posts: 1,406
I know how disappointing it can be to see the HGB drop especially when you are doing so much to improve your health. In the video, he indicated that most don't see/feel a marked improvement until 6 -9 months even though the neuro testing shows improvement.

I find magic bullets do exists, but not for most of us. John's path has been a very slow one.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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