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Old Fri Aug 12, 2011, 07:07 PM
Al's Wife Al's Wife is offline
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Join Date: Jun 2010
Location: Jackson, Georgia USA
Posts: 205
DanL,

Thanks for your reply. He was first tried on Vidaza when diagnosed in May 2010 and showed no improvements after six months. He also did a clinical trial of ARRY614 with no results.
At M. D. Anderson they said (because of logistics, I think - us living in Georgia and commuting back and forth) they would first try him on sapacitabine and if no results then they would try Estybon. I'm not sure, but maybe we should try the Estybon first even though it will mean us staying in Houston for longer periods.
I'm just the caregiver, but he leaves it all up to me, and I'm so afraid I'm not going to make the right decision. It's terrifying.
Thanks again for your input.
Linda
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Linda, Al's wife, 75; dx MDS 5/2010; Vidaza 6/2010; ARRY614 & Sapacitabine clinical trials at Emory, no results, stopped 12/2011. Had BMB at NIH on 6/5/12, blasts 10-15% so he's not eligible for trial there. :eek Promacta trial, Tampa, blasts 25-30% 8/17/12 AML, trying Dacogen now and praying.
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