vaccine before soliris
Hi,
I am new to the forum, but not new to marrow issues. Diagnosed in 1991 with SAA, treated with ATG, cyclosporine and steroids. I became transfusion independent, then developed PNH. Have been in the holding pattern, circling Soliris for a few years (glad that I could hang on long enough for it to be approved!).
Now my hemolysis has become unmanageable, LDH off the chart, they couldn't give me a count when I passed 1800 or so.
I will be starting Soliris as soon as the meningicoccal vaccine takes affect.
Question: which vaccine have you Soliris patients received? Menactra?
One clinic recommended polyvalent, another conjugated vaccine.
Thanks in advance for any tips or advice you seasoned Soliris patients may have!
Rich
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