Sally
Thank you so much for responding! That is very sweet of you to look into this for me  And for asking about my husband
We are signed up for my husbands first blood transfusion tmrw. He is very scared because of not really coming to terms yet with being dx (totally understandable) and quote "having someone eles blood in me" he's worried about it being safe. I told him thanks to this site and another pnhdisease.org that manny people have expressed the safety, importance, and feeling better after having them. So we will see how tmrw goes!
I look forward to reading great news about your husband! do you mind if I ask how did y'all handle wrapping your mind around his diagnosis? Any advise on cheering up my husband?
Thank you again I really appreciate your kindness 
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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