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Ece, I am so sorry about your mother. I hate it that Dacogen did that badly on her. When my dad first started taking Dacogen, his hgb and white cells dipped so low he went in the hospital and actually got put into icu for a few days. We thought we had lost him then. Then he started getting better and better and it worked for 1.5 years. Vidaza and all other treatments just did absolutely nothing for him. I do believe my dad and your mom are in Heaven and not having to endure any more suffering or pain.
Thank you everyone for the kind comments. It's been so helpful being able to turn to this forum in the last 3 years!
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Jill, daughter of Joe, age 76; dx mds RAEB-2 in 3/2010; Low wbc and low hgb, platelets normal; Put on Dacogen for 1.5 years, worked great until 3/12; Vidaza treatment next, 5 rounds - no improvement. Passed away from mds 11/13/12 after a long fight 
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