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Old Sun Jan 4, 2015, 11:49 PM
Cheryl C Cheryl C is offline
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Join Date: Dec 2011
Location: Lake Macquarie, Australia
Posts: 843
Hi Julie

Really concerned to read of your husband's current state of health. Things can change so quickly with this horrible disease. Please don't give up hope yet! I have a couple of options which I have used and you may want to investigate. They are natural remedies so there won't be any harmful side effects if you want to try them.

As a relief for the mouth sores I suggest antibacterial Medihoney (NZ manuka honey or US equivalent). It's natural, its delicious and I have found it helpful when I've had mouth ulcers. This website gives information about how it has helped in chemo treatment as well: http://www.express.co.uk/life-style/...-survive-chemo

Re the teeth problems, have a look at the coconut oil pulling option here: http://www.coconutresearchcenter.org...%20pulling.htm I have a sensitive tooth and because of the MDS and low white cells I am nervous of x-rays and invasive treatments and I find that this very quickly relieves my problem.

All the very best to you and Jeff as you try to find what's best for him.
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Dx MDS RAEB 10% blasts + hypogammaglobulinemia, Sep 2011. Jan 2012 BMB - blasts down to 2% w/out treatment so BMT cancelled. Re-diagnosis RCMD. Watch and wait from Feb 2012. IVIg 5-weekly. New diagnosis Oct 2019 AML 23% blasts in marrow, 10% blasts in peripheral blood.
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