Quote:
Originally Posted by Lbrown
I can't even figure out if ATG would be a permanent thing. I asked, but I never get much of a definitive answer.
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When I had it back in 1984, they told us it was a cure for life, but the current research now (coming straight from Prof Marsh's lips) is that it usually only works for 5 to 10 to 15 years. It worked for 25 years in my case, but eventually even my time was up!
I totally agree with Hopeful about finding an AA specialist and definitely getting more BMBs done. I absolutely loathe having them and find them excruciating painful, but even I recognise thhat they're the only way to really see what's going on in your marrow.
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36/F - 1984 SAA treated with ATG [complete remission until] Oct 08 - burst blood vessels in eyes and low platelets; Jan 09 - AA & hypo-MDS; July 09 - BMT (RIC MUD PSCT) July 10 - 10k for Anthony Nolan (1yr post BMT! 53:48) Sep 10 - Wedding!
I've run 5 marathons now!! (PB 3:30!)