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Thanks for telling your story, Gloria. It's so important for AA newbies to hear that just because ATG doesn't appear to be showing immediate and dramatic results, doesn't mean it hasn't been effective. It's a long, slow process, and as long as the general trend is in the right direction, waiting may be better than rushing to re-treat.
Hopefully your counts will continue to inch up, but in the meantime it sounds like Dr. Young gave you some very good advise. You CAN have a life with lower than normal counts, you just have to use good sense and be aware of your limits.
What I want to know is: with Hgb at 2.9, how were you able to walk into an ER or anywhere else? That's the lowest I've heard anyone report and still be standing!
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-Lisa, husband Ken age 60 dx SAA 7/04, dx hypo MDS 1/06 w/finding of trisomy 8; 2 ATGs, partial remission, still using cyclosporine
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