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Old Tue Jun 29, 2021, 10:41 AM
DanL DanL is offline
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Join Date: Dec 2010
Location: Denver, CO
Posts: 590
Neil is right on as usual. I would only add this point. As a patient in watch and wait for nearly 3.5 years, I woke up one morning and knew it was time. All of the signs were pointing to it internally and sure enough, within 2 weeks the Dr. recommended that it was time as well. Not sure why this should be trusted, but I have heard from many patients that they just knew when it was time, and this made acceptance of the need to move forward an easy choice.

Wishing only the best,
Dan
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MDS RCMD w/grade 2-3 fibrosis. Allo-MUD Feb 26, 2014. Relapsed August 2014. Free and clear of MDS since November 2014 after treatment with Vidaza and Rituxan. Experiencing autoimmune attack on CNS thought to be GVHD, some gut, skin and ocular cGVHD. Neuropathy over 80% of body.
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