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Old Wed Oct 7, 2009, 12:20 PM
Neil Cuadra Neil Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
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Forum member "mom2c2008" posted last year about her 7-year-old daughter who had a bone marrow transplant for MDS.

The transplant process is basically the same from one disease to another, but the experiences of individual families of course differ. You might compare notes with families who have experienced transplants for either pediatric aplastic anemia or MDS.

According to an article from 2007, the annual frequency of MDS is 0.5 to 4 per million for children and 20 to 40 per million for adults. That article and an earlier article discuss classification of the disease subtypes, saying that it makes sense to use different classification schemes for pediatric and adult MDS. A diagnosis of "refractory cytopenia" may be given when bone marrow blasts (determined by a bone marrow biopsy) are less than 5%, although the significance of the blast count is apparently an issue of debate among doctors. It also says that "children with trisomy 8 and other karyotypes may experience a long and stable course of their disease." Stability is good news.

We wish you all the luck in the world in finding a donor match, and in successfully dodging the flu.
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