View Single Post
  #1  
Old Wed Feb 29, 2012, 06:36 PM
CatherineJ CatherineJ is offline
Member
 
Join Date: Jan 2012
Location: London, United Kingdom
Posts: 29
Wait and watch? How long does it last?

My platelets have magically gone up to 102, and HGB to 13. Platelets have been in low 60s for months now and HGB hanging around 10.

Now my hematologist said I could be on wait and watch for five, ten, maybe fifteen years before needing a transplant. It's strange because there has been a big rush to find out what was wrong and I was having my blood tested every week, now it is every 6 weeks. I'm relieved, don't get me wrong, but I cant help but wonder what other people's experiences have been like with this disease and being on wait and watch. It's not a comforting thought to know that I will most likely need a transplant but I can't predict when.

Anyone willing to share their experiences with wait and watch would be really helpful.

Thank you and its rare disease day today, spread the word!
__________________
25F, Dx RCMD MDS 1/2012, on wait and watch for who knows how long
Reply With Quote