Thread: PNH Treatments
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Old Mon Feb 16, 2015, 08:41 AM
gandb77 gandb77 is offline
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Join Date: Feb 2015
Location: york, pa
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PNH Treatments

I am 83 years old and have recently been diagnosed with PNH. As I understand the only treatment available is soliris, and the treatment must continue for life.
Since I am on medicare I assume that Medicare will cover 80% of the cost.
MY real question is "How are all the other people with PNH and on Soliris paying for these treatments." I understand the costs are in six figures yearly.
Any insight into this would be very helpful
Thank George
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