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Hi TOPCOW
Hi Topcow ,
My daughter also had MDS and seizures ,
We found that if her Potassium levels were at a good level and he Magnesium also She didn't have any seizure on her seizure meds. she was on Phenobarbital , vimpat and onfi... Prayers to you this was by far one of the toughest journeys I had ever taken with her .
Amy went home to be with her heavenly father on February 11, 2015 she was 27
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Mother of a daughter 27 with MDS . Cognitively delayed at birth 1987 , seizures 5 days old . pancytopenia 2006, AIHA 2013, EVANS 2013 , CVID 2013, ALPS 2014. MDS 2014
8/18/2014
WBC .3 , hemoglobin 7.3 , hematocrit 2, platelets 60 , neutrophil .21 Mag 1.6, Potassium 4.6
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