Thread: Fanconi Anemia
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Old Sun Dec 18, 2016, 01:38 PM
Hopeful Hopeful is offline
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Join Date: Jan 2009
Location: California, USA
Posts: 766
Hi JeriM,

Have you tried joining the FA forum that can be found through this link:
http://fanconi.org/index.php/family_support

I don't know how active the group is, but it does seem to cater to adult patients and parents of children with FA.

I had FA genetic testing done as part of a research study. They would not tell me my results at the end but said to do genetic testing/counseling if I was interested. (I haven't done this yet.)
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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