Thx y'all  I told his team while we were there last Monday and they gave him that look and asked some follow ups. Like were you riding in front, mask on? make sure you are using good judgement based on the info we've given you. And explained why it's a risk. I walked away from it shocked that he wasn't scolded but also that they know they can't cage a young man from everything forever and if he's going to do it anyway that at least they can educate him on the safest way. I think bc he has no other complications their watching (glory to God!) it made that response from them easier.
He scares me but I have to remember all of this new found energy is a really good thing. I've lately been questioning why I don't have as much as him! Lol
Also although I want to control all of this I can't
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Heather, wife of Ronald 36; dx PNH 2012; Dx VSAA 2013; eculizumab(Solaris) hATG 2/20/13 cyclosporine 400 mg daily. 37 units RBC and 15 units of platelets. Post BMT -pentam,vorconizole,valtrex, valcyte, actigall, Pepcid , prograf, magnesium.
10/10 MUD 10/10/13
Now no PNH or AA. Mixed Chimerisim
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