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Thanks Curlygirl! I really appreciate you posting those links. They were exactly what I was looking for.
...so looks like we still have a year or two before seeing the results.
I wonder if I'd be eligible for the trial for Moderate AA as you mention. I'd asked Dr. Townsley and she said as a rule, probably not, as partial responders (as I am, since my ANC is generally below 1000) can often do fine without further treatment, and any trial is risky.
Since I don't really get sick with my low ANC, for the time being I'm trying to taper my cyclosporine and other meds, as opposed to taking more meds, but it is good to know that promising new treatments like eltrombopag exist.
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Kevin, male age 45; dx SAA 02/2012 - Hgb 5.8, platelets 14, ANC 200, 1% cellularity. Received ATG 03/2012. As of 03/2015, significant improvement - Hgb 15, platelets 158, ANC fluctuates around 1000, Lymphocytes 620. Tapering cyclosporine. BMB 20-30% cellularity.
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