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Old Thu Jun 19, 2014, 11:38 AM
Chad S Chad S is offline
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Join Date: Jul 2013
Location: Dallas, Texas
Posts: 17
It is great to see that several of you are close to the 1 year mark and also seem to be doing well.

DanL, I remember when my wife was at the 100 day mark we were just finishing our time in Houston. She was still on tacrolimus and it required her to replenish magnesium levels daily. She also had pretty bad headaches from the tacro. But now she is out and about driving the kids around, so hang in there.

Neil, to our pleasant surprise, MD Anderson said they would see us in 6 months! She received her 3rd round of immunizations while we were there for the 1 year appointment and I think the last round will be next time we go. They also said she could do the blood labs every two months now, but I think she is still wanting to go once per month. It seems to comfort her to get the blood work checked more frequently.

She has come such a long way and I am so proud of her!
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Chad, husband of Danielle age 39, diagnosed MDS (RAEB-1) Feb 2013, BMT May 2013
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