Today I'm 118 days old.
I developed skin GVH which went to 2nd grade. We are VERY slowly tapering steroids to prevent it reflaring like it did after the initial short burst of steroids. So, I'm continuing all the prophylactic antiinfectives, including the activation which tastes like tempura paint. Yuck! But it's better than PCP pneumonia, which I've helped treat before.
Overall, I've had it easier than I ever had any right to expect. My children are happy and adjusted, even though they continue to ask when I will be completely better from the transplant. The family has learned to depend on each other more and realize that we each have a role to play, whether you're a parent or the youngest child (7).
This is definitely a journey, and not one for wimps.