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Old Wed Apr 18, 2012, 03:51 PM
Karenish Karenish is offline
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Join Date: Feb 2011
Location: Stafford, United Kingdom
Posts: 100
I am 52 this year - before diagnosis I was convinced I was peri menopausal...periods erratic and had stopped for a few months, hot flashes, hair growth on chin (male hormone kicking in), I was on the pill so doc would not do the female hormone test as the result would be compromised by the pill - so then had diagnosis SAA in january 2011 - had rabbit alg, and during serum sickness slight spotting....then nothing until about 2 months later and a period began, incredibly heavy, but, platelet infusion brought it to an end. After this scary experience I was put on Northesterone to stop periods completely, my consultant didn't really want me too, but I insisted.
However last transfusion was before christmas, (recently had platelets but that was only to remove hickman line which had failed) and counts currently hb 8.5 plates 30. I have experienced the most itchiest of rashes which has stopped me from sleeping, and scratching like a banshee in work which was embarassing! So this month I stopped taking the northesterone to see what happens, I am having a period, its no heavier than it used to be, but it is very bright red and low abdominal pain. I am still on cyclo - but strangely enough, no hot flashes anymore, clinic did a female hormone test on me and I have the same levels as a teenager, so menopause is way off for me according to that!!! I will never know if all the peri menopausal signs were really AA starting, or whether rabbit ALG has somehow put back my biological clock. My mum had her menopause in her mid 40's!! By the way, the itchy rash is subsiding, been off the northesterone 2 weeks now.
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