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Scott, sending wishes for a happy day on your Dad's 77th Birthday! I know you all will help him blow out the candles, if necessary. But something about your father makes me feel like he'll muster the strength to do it himself!!
I agree that hospital time sucks, and it seems like we spend way too much time there! Dad's been on this schedule for so long, my worry is how long can his body tolerate the transfusions and the excess iron. His ferritin level continues to rise, the Exjade can't keep up with so many transfusions! His kidney's aren't happy either.
I will continue to pray for a miracle - for your Dad and mine. In the meantime, I appreciate your thoughtful contributions to this forum. I find it very lonely dealing with this bone marrow disease. Even our doctors can't give us much definitive information. I am so grateful to have found this website! Thank you all!
Deb, daughter of Paul, 77, diagnosed with SAA 8/07, transfusion dependent, 2 ATG treatments, no response - yet!
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