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One theory on the FE increase is that more of the iron stored in the organs can now be stored as ferritin which is how the body stores iron safely. I've known others who have seen this happen when they get down to a safe level, the FE has small increases and then eventually stabilizes to normal levels. At some point, ask them to run a full iron panel and maybe check to make sure he does not have hemochromatosis.
Also, the mild GVHD can cause it to fluctuate.
Our doc thinks John can stop now but we also want to get the iron down to at least 70-100.
Glad Mike is doing so well. I know it's a big relief for you also.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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