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Old Fri Nov 22, 2013, 11:47 AM
Mseth Mseth is offline
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Join Date: Sep 2013
Location: New Delhi, India
Posts: 186
Quote:
Originally Posted by Birgitta-A View Post
Hi Mseth,
It takes years for iron overload to cause serious damage in the liver (we manage well with 33% of the liver) and the heart.
Hi Birgitta-A,

Thanks for the reply. My next question is if there is an answer as to how many years can one manage without chelation, if getting regular transfusions. How does one decide whether or not to take the drug and risk the adverse effects. The mixed reports on whether or not chelation is an advantage for older MDS patients confuses the issue further.
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Mother age 79, dx MDS RCMD low risk del 20q April 2013, no response to EPO, Danazol. pRBC tx dependent - 2 units every 3-4 weeks, exjade Dec 2013 - Mar2014, restarted Dec 2014
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