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Glad you are doing well
Quote:
Originally Posted by rar
Even when there is a trend it may be difficult to make sense of. I had platelets of 70 +/- 10 for 12 readings over a 3 month time frame. Then in 2 weeks I had a doubling in platelets. I had 140 +/- 10 for 8 readings over a 2 month period. My 3 oncologists could make no sense from it and say at least platelets are close to normal.
A year and a half ago after 2 months on an experimental drug oh a phase 1 trial my blasts went from 14% to 1%, WBC, RBC, and platelets were still all critical. 3 oncologists had the same advice. I was in very good health, blasts were under control, anything other than a transplant is only temporary, do the transplant now. It was about 3 weeks to the transplant. MDS appears to be cured with a few speed bumps in the meantime. I still on immuno suppresents and some residual GVH. I received good advice from my doctors. If you have confidence in them listen to your doctors.
Ray
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Ray,
Thanks for the input. Glad you are doing well and I hope you continue to do so.
Merry Christmas
Data
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Prostate Cancer: Treated in early 2013 with HDR Brachytherapy. MDS-RCMD: Oct 2014. Biopsies: 46,XY,t(7;18)[2]: 46,XY,del(7)( q22)[3]: 45,XY,-7[6]: 45,XY,-7[10]: 45,XY,-7[13]. HSCT in April 2016.
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