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Thanks for the advice...
Thanks, nan, for your advice. I have looked at that site, but I guess not closely enough.
Also, thanks for the explanation from Stephen King. It certainly helped too.
No treatment has been recommended for me, mostly because of my low platelets (currently in the 30s), and I have had no overt symptoms from the PNH.
I will definitely look at the PNH site again, and look forward to hearing my latest results.
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Gloria, early 50s, dx SAA Summer 2007, Pred July 07, Rituxan Aug 07, dx PNH Feb 2008, ATG Apr 08, began Soliris 5/31/11
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