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Old Sun Oct 18, 2009, 10:11 PM
Chirley Chirley is offline
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Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
Hi, I'm not on Vidaza. My doctor was loathe to start me on it when I'm still hanging in there with the transfusions. But, he did say that if I was started on Vidaza I would have to stay on it and never come off it. I can't remember if he said that it would make treatment more difficult if I needed it again or whether I assumed that's the reason.

He was talking about 7 days IV per cycle at the time.

Chirley
__________________
Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
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