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Old Tue Nov 5, 2019, 09:32 PM
quantpsyc quantpsyc is offline
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Join Date: May 2017
Location: Leland, NC
Posts: 24
Fighting the good fight!!

Hey David, Glad they are finding solutions for you. It seems like Ed is a mile or so behind you on a similar path. Eds platelets have crashed, RBC and WBC declining but not as rapidly. Good news is biopsy shows no relapse. Bad news is that biopsy shows not much of anything else either, extremely hypocellular. "May be" graft failure (in that I hear "maybe not"!!). Considering Eltrombopag and also talking DLI. Except for the pesky nosebleeds and bruising Ed is feeling pretty good and thankful for each day.
Hope your path continues to be smoother! Prayers for us all!
Kathleen
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Kathleen, adoring wife of Ed 67 yo, Dx April 2017 MDS RAEB2, no chromosomal mutations, as of August 2017 only supplement therapy, living and loving each day.
October 2018 started Decitabine, "exceptional response", MUD HSCT May 7, 2019.
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