Thread: pnh question
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Old Wed Jan 18, 2012, 03:19 PM
3blankets 3blankets is offline
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Join Date: Feb 2009
Location: Rochester NY
Posts: 16
Thanks.

I did just have another bone marrow biopsy. I think my 15-20% of my cells are pnh cells. I am not sure what the next step will be. My counts are stable right now, wbc 2.3 hematocrit 28, platelets 45,000. At what point does the solaris become necessary? I am also worried about blood clots. How would i know if i had one??
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Erin 38, AA diagnosed Sept 2008. Atg Nov 08, relapse Nov 10. pnh 12/12. 40% pnh clone. Currently on Soliris.
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