Thread: pnh question
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Old Thu Jan 26, 2012, 12:50 AM
Susan Susan is offline
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Join Date: Sep 2003
Location: Chicago, Il
Posts: 101
An MRI of the veins in the abdomen and head can rule out history of or current clots. Can occur in legs, but often signs, redness, pain, swelling. Usually you would know if you have one but sometimes can be silent. Watch the AAMDS webinars!

I hope you go see a PNH expert, well worth it. Most hematologists, even great one know very little about PNH. You'll feel much better once you see one, learn so much more for sure about your situation:-) They can work with your local hematologist.

Susan
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AA/PNH Dx 1998, Warfarin, Soliris
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