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Hi Jenny,
Glad the info encouraged you. Don't ever give up and keep up a positive attitude. You have to be your own advocate with MDS.
Have you had a bone marrow biopsy? Hopefully you can start on a drug that will help your MDS. A doctor that has experience with MDS is very important.
Kirby
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Kirby71, RAEB2 dx 2/04, Thalidomide 30 mo, Revlimid 18 mo, No resp Vidaza
6/09 2nd Thalid use, Promacta, Lowdose Dacogen added 10/09 at 40% blasts. 5/11 BMB-blasts 8%.
2/11 2nd Revl restart=good resp, Platelets drop 6/11, 3rd Thalid,+Nplate+Dacogen. 7/12 Cnts stable for 10 mo.
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