[Lifeguard]

Over the last two months I have been affected by an irritating light rash on my neck and face. Last weekend I had swollen eyelids due to the rash. It started initially behind the ears. After looking at aspects of my diet and any new environmental factors I decided to take two weeks off Revlimid. Thankfully the rash disappeared, but after recommencing the drug it reappeared three days into my treatment regime. The specialist agrees that it is probably caused by the drug and has suggested that if the rash continues that I may have to reduce the dosage and start on steroids. Currently I use Dermaid (hydrocortisone cream) which works quickly to reduce the inflammation of the skin. I have a few questions that maybe can be answered on this forum;

If I don’t want to go on steroids and live with the light rash will there be any other ramifications?

Is the rash a sign that more serious damage could be happening in my body?

How has steroids affected others on this forum? Is it worth taking steroids?

I have been on Revlimid for nearly two years now and believe that my bone marrow biopsy in September will show a complete cytogenic remission. I unfortunately am not one of those lucky people on Revlimid who have no side effects. I have lived with constant side effects for awhile and have just got use to it being my new normal. I have become a little emotional because the skin has become so sensitive.

I would be grateful for any advice.

Cheers,
Rachael