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Old Thu Feb 28, 2019, 10:35 AM
Sally C Sally C is offline
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Join Date: Dec 2010
Location: Chesterfield, Va.
Posts: 467
Hi Phillip,
I would like to answer your question to medicalenigma. My husband was the first patient in a clinical trial at The NIH for Promacta for MDS patients. The NIH had so much success with their AA patients and Promacta they decided to try it with their MDS patients. After over 125 blood/platelet transfusions he has been in remission since summer of 2012. His last CBC in Feb., 2019 showed whites normal, reds over 12 and platelets 113,000. He had absolutely no side effects from Promacta which he took from the spring of 2011 to the summer of 2012. He has had no further treatments for his MDS since then. For the first time since diagnosis in Dec., 2008, Don's hematologist doesn't want to see him for 6 months. Before that it was monthly, bi-monthly or every 3 months. Nothing short of a Miracle.
All the best,
Sally
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